Using My Amazon Echo Show, Part 2
I’ve written in the past about my Echo Show from Amazon Alexa, but I wanted to provide…
Articles by Kevin Schaefer
A Balancing Act
February was a pretty exhausting month for me. I kicked it off with a two-week stint of pneumonia…
A Question that Surprised Me
Having SMA means that strangers approach me on a regular basis. From the onlooker who’s infatuated with my…
Recovering from Pneumonia, Getting Back to Work
Alas, after a long couple weeks of constantly spitting phlegm into a cup and spending hours attached to…
Avoiding the Flu, Catching Pneumonia Instead
It’s been a pretty lousy week for me, to say the least. What started as a ridiculously annoying…
The ‘SMA News Today’ Forums: Discussions About Spinraza, Research and Development
In addition to providing a space for SMA patients, parents and caregivers to talk about their daily lives and ask…
The ‘SMA News Today’ Forums: Join These Discussions
Since the launch of the SMA News Today forums, SMA patients and caregivers from all over have taken part in…
ESPN Documentary About ‘SMA News Today’ Columnist to Air on Super Bowl Sunday
On Sunday, February 4, 2018, a feature-length documentary about SMA News Today columnist Alyssa Silva will air on ESPN…
SMA Author and Nonprofit Founder Heads to China
Kevan Chandler, founder of the nonprofit organization We Carry Kevan, made national headlines in 2016 when some of his closest…
3 Things that Helped Me Combat the Mental Effects of SMA
While spinal muscular atrophy is strictly a physical condition, it can still take a mental and emotional toll…