All three of our kids — Ava, Henry, and Ella — have been stuck inside the house for a month or so due to COVID-19 quarantine. They’ve been finishing school work, playing on their devices, and doing other small projects. Ella’s mom, Lindsay, and I…
Like everybody else, Ella has been kept in the house because of COVID-19. During the school week, she spends much of her morning working on classroom assignments. Each morning she has a Zoom meeting (virtual conferencing) with her whole fourth-grade class and the teacher.
Spring is peering its head around the corner of winter. Some warm days with slight winds blow the remaining leaves around in swirls. Small yellow flowers poke themselves up through the hardened ground. Buds are forming on tree branches and birds chirp a new song for the upcoming…
It was a sad time when our dear Potter had to be put to sleep because he had T-cell lymphoma. Our entire family went along for that, including Potter’s sister, Ginny. We knew our 3-year-old dog wouldn’t make it, so before he left us, we contacted a…
School books, folders, random scratch paper, art supplies, food, drinks. All of this lay aimlessly on our kitchen table. Until recently, my children — Ava, Henry, and Ella — spent much of their day at the table. There, they engaged in e-learning, arts and crafts, and eating. We…
Ella loves school. She thrives on social interactions and has a thirst for knowledge. Every day after school she gets a snack and pulls up to the breakfast room table to work on her homework. On weekends she plays school and pretends to be the teacher. Her grades…
The world is holding its collective breath as COVID-19 makes its way across the globe. My daughter Ella has SMA. Her respiratory system is particularly fragile and compromised due to her disease. A simple cold can wreak havoc on her, landing her in the hospital…
Warm weather in Chicagoland is slowly but surely creeping in. Temperatures on some days allow kids sporting short-sleeved shirts to play outside. Ella’s older brother, Henry, recently took advantage of a warm Saturday afternoon. He found his basketball and pumped it up. We have a regulation-sized…
At 9 years old, Ella is at the age in which she has become more concerned with her looks. And by the way, she has a crush on a boy at school! When her brother, Henry, came home last week with highlights in his hair,…
Ella is 9 years old. She has a debilitating disease called spinal muscular atrophy (SMA). Her life is difficult at times, and she needs assistance with everyday tasks. She does as much as she can by herself, but ultimately she needs a lot of help. You…
