Diagnosed at 5 months of age, Alyssa has set out to raise awareness about life with SMA Type I through writing. By getting personal and being open about her trials and triumphs, she wants the world to know that SMA can put up a good fight, but we can always fight back exceedingly harder. Aside from writing, Alyssa is the community director for an adaptive fashion brand and has founded her own nonprofit called Working On Walking. In her free time, she enjoys discovering new coffee shops within a 50-mile radius of her hometown in Rhode Island.Well, friends, today’s column is going to be unlike what you read here most in my little corner of the internet. That’s because this column is brought to you by endless fluids, antibiotics, steroids, and a nasty respiratory infection that is most likely walking pneumonia. Ah, yes,…
Let’s start this column off in the most real way possible. I’m weird. And I’m not afraid to let everyone know. I’m not talking about my weirdly disproportionate head-to-body ratio or that I have an arm that weirdly resembles that of a chicken wing. No, the weirdness I’m…
Birthdays take on a slightly different meaning around here. At this time every year, I think about a story my mother once told me about the first birthday I celebrated and wonder how painful and heart-wrenching it all must have been for my family to process. Although I’ll…
Until I was 15, I managed to stay reasonably healthy. But for the first time in almost a decade that year, I was hospitalized. The winter months can be tricky, with colds and flu taking over just about every person you come in contact with. I was admitted…
My wheelchair has been my ultimate sidekick since I was a curly-headed toddler, and just like any other great sidekick, I rely on it for pretty much every aspect of life. Without my wheelchair, I would be helpless, confined and literally stuck. As the only source of independent…
As much as I don’t like to admit it, sometimes life can be brutally unfair. I’m even hesitant to type these words because it seems as though everyone is always so focused on creating and chasing the idea of a perfect life. No one wants to be metaphorically…
Second in a series. Read Part 1 here. There’s a certain significance that Dec. 4 holds in my life. What started as an ordinary day morphed into the day that forever changed the course of my life. That’s just how life works in its mysterious ways. The…
If I asked you right now to tell me what your life’s defining moments were, what would you choose? Would it be something that left you feeling content and hopeful? Or would it be something more dark and gloomy? Each of us has moments when it’s almost as…
“When life gives you lemons, make lemonade.” We’ve all heard this saying. It has been repeated and engraved into our brains. It teaches us to take the bitterness of life and learn to make it sweet again. Rise above our adversities and choose to lead a positive and…
“All right, Alyssa, let’s see how quickly we can do this,” I shouted to my assistant, who conveniently shares my name. I had exactly one hour to get flowers at the local supermarket and get to the hospital to visit my grandfather before his physical therapy appointment. So…
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