It can be difficult to get around a metropolitan area, especially when you’re in a wheelchair or otherwise disabled. Thankfully, the Americans with Disabilities Act (ADA) addresses the issue of accessible transportation. To read more about the ADA’s impact on accessible transportation throughout the United States, check out…
According to Cure SMA, there are several areas of care that need to be taken into consideration when looking after a child with spinal muscular atrophy (SMA) when they have a cold. These areas include: Evaluating mucus buildup and secretion mobilization When children with SMA have a cold,…
https://www.facebook.com/CurbFree/photos/a.545296022229992.1073741830.543652679060993/1405721849520734/?type=3&theater Traveling while disabled is difficult. Transportation, lodging, and even health concerns can turn a relatively easy trip into something resembling a nightmare. There are travel agencies out there that cater specifically to disabled people, but experience is invaluable. You want someone who knows what it’s like to…
https://www.facebook.com/mobilityventuresauto/photos/a.780866102002354.1073741829.775116349243996/1140472656041695/?type=3&theater In 2016, Mobility Ventures released the MV-1, which is the first van to be built specifically for wheelchair users. With its wide interior space and easy-to-use ramps, the MV-1 is one of the best transportation options available today for SMA individuals. Features Features of this vehicle include an…
This MediaStorm documentary is all about Philly Mayer. Philly is a bright and happy 9-year-old boy who was diagnosed with spinal muscular atrophy (SMA) as a toddler. MORE: Learn all about the new exoskeleton designed to specifically give children who suffer from spinal muscular atrophy (SMA) a chance…
As Halloween approaches and everyone crams to put together last-minute costumes, SMA parents may be wondering how they can get their kids involved. Traditional store-bought costumes are often difficult for SMA children to wear, as they’re either too tight or quite uncomfortable. However, one company wants to make sure…
SMA News Today is proud to present the first episode of our new podcast. This is a monthly podcast in which Community Editor Kevin Schaefer will interview a variety of individuals who have SMA. In this episode, Christine Getman shares her story and discusses her work with the nonprofit…
Cellphones have quickly become an integral part of the modern lifestyle, and could be especially useful for SMA patients. From emergency phone calls to home control apps, cellphones offer disabled people independence, freedom, and much more. Depending on the model, a cellphone can be too heavy,…
Jonathan Greeson is an SMA author, financial advisor and the founder of the North Carolina Electric Wheelchair Hockey Association (N.C.E.W.H.A.). After graduating from North Carolina State University with a degree in business administration, Greeson spent years working to become a financial advisor. During this time, he also founded the N.C.E.W.H.A.
While there are many different types of adaptive equipment that can help people with spinal muscular atrophy (SMA) and other forms of muscular dystrophy, one in particular is designed for people with limited upper body mobility. Developed and manufactured by Kinova, the JACO Robotic Arm is specifically designed for…
