Having a Disability Often Feels Like a Full-Time Job
As I’m writing this, I’ve spent the last hour coordinating caregiver schedules, arranging transportation for my next physical therapy appointment and ensuring that I have rides for weekend plans. This is all on top of my daily responsibilities for my real job.
It’s one of those days when I’m reminded how much additional work there is each day when you have a disability. I’m willing to put forth the effort, as I enjoy the independence I do have. Though I live with my parents, I work full-time, have a caregiver with me throughout the week, have friends who drive me and I help out my parents a lot financially. I pay rent, cover caregiving hours that aren’t covered by the government and pay for all my entertainment and leisure expenses. I enjoy the feeling of being as independent as I can, but it takes a lot of additional effort.
I’m sure all of us can relate. Between working, managing caregivers and attending to our own health needs, it’s exhausting. I have my own strategies for stress management which I’ll share in another post, but for now I just wanted to discuss this with you all. Do you all feel this way sometimes?