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    Planes, Trains, & Accessible Travel With SMA

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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 3 replies, has 4 voices, and was last updated by  Ryan Berhar 2 weeks, 3 days ago.

    • Author
      Posts
    • #20848
       DeAnn R 
      Keymaster

      On a dreary day like today lounging on the couch with a good book sounds divine. Just one problem with that, the couch isn’t comfortable. Besides that it’s tough to even get onto the couch. I prefer the comfort of my wheelchair. Although I look forward to going to bed, I’m usually ready to get up into my chair by morning. When I’m sick I feel my cough is stronger in my chair. On average I probably spend 14+ hours a day in my chair. Curious, do you find your chair the most comfortable place? If not, how do you get comfortable in other places?

    • #20855
       Tracy Odell 
      Participant

      Definitely most comfy in my ‘chair!

    • #20861
       Dennis Turner 
      Participant

      My chair.  My bed is truly a torture device after a few hours, but I can adjust my chair to make it more comfortable by tipping it back.

    • #20865
       Ryan Berhar 
      Keymaster

      Oh absolutely. I hate being anywhere except my chair

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