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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.

This topic has 3 replies, 4 voices, and was last updated 7 months, 3 weeks ago by Ryan Berhar.

  • Author
    • #20848
      DeAnn R

      On a dreary day like today lounging on the couch with a good book sounds divine. Just one problem with that, the couch isn’t comfortable. Besides that it’s tough to even get onto the couch. I prefer the comfort of my wheelchair. Although I look forward to going to bed, I’m usually ready to get up into my chair by morning. When I’m sick I feel my cough is stronger in my chair. On average I probably spend 14+ hours a day in my chair. Curious, do you find your chair the most comfortable place? If not, how do you get comfortable in other places?

    • #20855
      Tracy Odell

      Definitely most comfy in my ‘chair!

    • #20861
      Dennis Turner

      My chair.  My bed is truly a torture device after a few hours, but I can adjust my chair to make it more comfortable by tipping it back.

    • #20865
      Ryan Berhar

      Oh absolutely. I hate being anywhere except my chair

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