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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 3 months, 1 week ago by DeAnn R.

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      • #20402
        Ryan Berhar
        Participant

        Hey everyone! Hope you’re all having a great week.

        Check out my latest video here. In this episode, I talk about what I’ve been doing this summer. This was my first full summer with my JACO, and the arm proved to be especially useful at my cousin’s wedding. Watch the video to see why.

         

        This episode is short and sweet, and I hope you all enjoy it! Let me know your thoughts, and please subscribe to our YouTube channel. Thanks for watching!

      • #20415
        DeAnn R
        Keymaster

        Great video! Sounds like the JACO has been really fun and useful. I’m excited to try out the dynamic arm support towards the end of September.

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