Staying at Home Alone When You Have SMA
Hey everyone, hope you all had a great weekend!
My parents and I were in Kentucky last week for a short vacation, which turned into quite a fiasco. I’ll write more about it here, and in my column, but let’s just say that it started with the hotel we were supposed to stay in screwing up our reservation and having no accessible rooms available. We ended up having to go to two more hotels before we found one with an available roll-in-shower. That was just day one.
Anyhow, we’re home now, and I was able to read a few books on the trip. One was Shane Burcaw’s latest book, “Strangers Assume My Girlfriend Is My Nurse” https://t.co/94LA3StIGJ. This is sort of a sequel to his 2014 memoir “Laughing At My Nightmare,” but it’s more a collection of essays and stories. I highly recommend it, and I’ll start a discussion on it in the disability in media forum soon.
One section of the book addresses the topic of staying home alone when you have SMA (or a similar disability). Shane writes about how he didn’t have a problem with this for a long time, until a particular incident made him paranoid about it. I’d rather not spoil this incident for you, as you should read the book for yourself. The point is that it made him anxious about staying home alone for a while, and it took him some time to get over it.
It got me thinking about this subject. Personally, I like it when I get the house to myself for a few hours. My Mom usually goes out with her friends once a week or so, and if I don’t have any plans I just chill out at the house by myself. I keep my phone on my tray and within reach, use Alexa technology to control my music and tv, and I have to keep my right hand on my joystick. If there’s an emergency, I have a button that opens my front door, and I can also call my neighbors. Plus, my JACO arm enables me to eat and drink without anyone’s help. Granted, I can’t stay by myself all day, but I can do a few hours without any issues.
I know this is different for everyone here, and some people need people with them around-the-clock. That’s ok, but I was just curious about this topic. Do you have a setup for when you’re alone? Do you have any precautions if there’s an emergency?