I am sad to hear this Alyssa.

Sending you good vibes! 🌹🌞🌈🧡✨

as always, I don’t think other people are responsible for my feelings, I am responsible for my feelings.

Do I accept myself as not being good enough professionally? Do I accept myself as not being good enough as a friend? Do I accept myself as a disabled person?

If I do accept myself as a disabled person, I am not going to be hurt by… Read more

yeah I mean these kind of things happen to everybody, it is just part of being a human:) I also did 2 weeks ago very stupid thing that impacted my health (I am too tired to write about that right now), and I was so furious 🙂 But this is like being angry at yourself because you have to eat, you just have to it, every living being has to it,… Read more

When I communicate with people online I like to write long messages, so I can explain my attitude/stance, so I can be sure (so I can try to be sure) that nobody is offended etc.

I don’t have the time to do that right now, but I just wanted to say that I agree with what Lupa said.

It seems that people suffer so much from SMA (which… Read more

Nice, congrats Alyssa!

So if you are not worried about Covid, what is actually happening?

I don’t have anxiety but every contact definitely affects me more. Like if I go to the office and have just some little chit-chat I can think about that for the rest of the day. What did I say, how did I say it, what was my body language – and the same thing for persons I… Read more

Hello Crystal, another great topic started by you, and I am gladly going to contribute to it, so thank you!

Before I start ranting, let me first say that I think that this is not an easy topic 🙂 It’s one of the most profound questions in life – how can I accept myself for what I am? This question plagues healthy people as well as us… Read more

OMG, the big spider thing sounds absolutely terrifying! I guess it can be very discomforting to see something that you know for sure is not real and can’t be in your room, but to not be able to jump up and get away (just in case) from freaking giant spider… horrible situation.

That is pathetic, but it is perfect paradigm for what kind of world we are living in.

On the other hand I think that this situation should be the topic of your next column. It’s brilliant, and you can scale it up or down, but I would probably scale it up. Do some research on other corporate campaigns like this, if some had some real impact or… Read more

great news DeAnn, fingers crossed that evrything goes well!! It is so nice that after this nightmarish year you will actually be able to start 2021 with new hope:)

I am complete oposite:)

I like going to bed around 9 or 10 pm, and getting up between 5 and 6 am.

Few months ago on a podcast on productavity I heard a guy say something like ” I get up around 6 – 6:30 am, but I guess everybody is different” ; than the woman replied “I know quite a few people who thought they are not morning person but than… Read more

wow this is interesting… but in your case since Spinraza enabled you to keep living independently I think the answer is clear, Spinraza over money.

At least this how I see the world, I don’t think happiness, pleasures, comfort etc.  are the most important things in life; I think we are here to learn, work, give love (if we succeed… Read more

The last picture is absolutelly brilliant!

Your enthusiastic smiled face and her doubtfull but opening position in the background, it is like a metaphor for the whole situation.

I love it!

Alyssa do you know what got you interested in this topic?

If the answer yes, have you tried probing behind that conscious reason? Probing behind it meaning is that the REAL reason?

Since you say you went down a rabbit hole last night I think prior to continuing down the whole very good thing would be to answer above questions.

You say… Read more

Alyssa The Marvelous Mrs. Maisel is created by the same person who created Gilmore Girls – Amy Sherman- Palladino! 😀

I watched Gilmore Girls long time ago, but I think Mrs. Maisel is a bit less girly and more funny 🙂

Exactly my sentiment Alyssa; and not just social media, I avoid any news related media.

For me it is not only about people taking this situation too lightly, I get mad when I realize that an official is blatantly lying in to a camera, or when I realize that someone is far too incompetent for the position he/she is holding… so I stay up to… Read more

our conscious mind is often not enough when we need to make important decisions. One way of listening to unconscious part of our being is paying attention to our dreams. When you go to bed you can pray to God, or Gods, or Universe, or simply make a strong decision that you will remember your dreams in the morning, and that you will try to… Read more

guys please have in mind that a person can be contagious with up to 14 days without any symptoms (they can feel perfectly fine), and also the virus can survive on surfaces for days (much longer than other viruses). Please think again about receiving any kind of guests, and do disinfect anything that enters your house.

This may sound tiresome,… Read more

DeAnn I am so sorry for what happened, and the way it happened.

I don’t have kids, and don’t plan on having them, but I had experienced loss of animals that I had a privilege to share life with and it is very painful.

I do believe in reincarnation and since Roy spent his life in more meaningful way then most humans I really hope he will… Read more

Nicely wrote column Kevin, lots of humor, but ”Lexington, Kentucky” line was the best one for me:D Is Lexington, Kentucky really notorious for accessibility, or is it like generally one should not expect many accessible sites in Kentucky state? Whatever the reason is, I like how the whole sentence sounds.

So as I said I like the humor, but… Read more

I have no access to Spinraza and it is not likely that I will have it any time soon, so these are all new information for me – surprisingly unfortunate information. For the amount they are charging for Spinraza they should organize a charter helicopter to each and every patient.