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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 10 replies, 10 voices, and was last updated 6 months, 1 week ago by Losmi.

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    • #21437
      DeAnn R
      Keymaster

      Considering just last week I posted about considering a pet for Christmas, this is a difficult post for me. Yesterday I lost my service dog, Roy. His death was sudden and unexpected. He collapsed shortly after I let him outside and he died instantly. If you follow my vlog you’ll know he’s made several appearances. Plus he just got a clean bill of health just last month, so this is quite a shock. Not only was he a fantastic service dog, he was a companion and best friend.

    • #21440
      Dennis Turner
      Participant

      So so sorry to hear of your loss. I remember when you did the weather with Roy vs. Alexa.

      It is always hard to lose a friend.

    • #21450
      Michael Morale
      Keymaster

      While growing up, my parents always taught me that the animals that we had as pets were more than just pets, they were part of the family. They taught us the value that these animals bring, and by doing so, my brother and I never looked at them as animals, we thought of them as family members. While I’ve lost numerous pets in my life, I’ve never had one suddenly passed away like DeAnn did.

      I’m so sorry to hear about your loss, and just know that you and your family are in my prayers. Nothing that I can say can ease the pain, but just know that I’m here if you ever want to talk.

    • #21451
      Alyssa Silva
      Keymaster

      DeAnn. I am so so sorry for your loss. Losing a service dog is incredibly heartbreaking, and my heart goes out to you. If you need a friend to talk to, I’m here.

    • #21454
      Kevin Schaefer
      Keymaster

      So sorry for your loss DeAnn. I always enjoyed Roy’s appearances in your videos, and my heart goes out to you.

    • #21457
      Crystal
      Participant

      Awe that’s horrible DeAnn! Do you know why he died?
      When I was little, I begged my dad for a pet tiger. He said no, of course. But I guess he told his mom (who lives hours and hours away) about it, cuz she sent one of her newborn puppies up to us. She had named him Tiger cuz he kinda looked like a tiger. Tiger became my best friend. He wasn’t a service dog but he was VERY strong and protective and SMART. But when I was around 8, my dad left me and my 2 brothers and he took our dogs with him. Our half sister (his daughter) and her wife took us in and eventually adopted us. That was the best day of my life, but I missed Tiger dearly. Then a couple years ago, April (my mom who used to be my half sister) said she had bad news: Mammaw had breast cancer, and Tiger died. He died suddenly too. No one knew he had heart worms. It still hurts. Micheael is right in that there really isn’t anything we can say to make the pain go away, but I’m reading this book called Revealing Heaven in which the author (who claims to have been taken to Heaven many times and ordered by God to tell us all about Heaven) says that when we die, we will be greeted by everyone we loved – including our pets. That makes me feel better a bit…
      May God comfort you in your pain. Hugs!

    • #21461
      Kelly Miller
      Participant

      I was so very sorry to read your post tonight, DeAnn. I’ve had pets for as much of my life as I can remember, and they have always been a very special part of our family..My husband & I have been thru a couple of dogs in our 22 year marriage, and each death has been just as heart-wrenching as the others. I’ve never had a service dog, but I can imagine that the bond between you is so much stronger than just the avg. human/canine relationship. He was especially tuned in to you and your needs, and he did things for you because it made him happy to help you. I’m sure he was not just your muscle but also your comforter & confidant. That kind of friendship is very difficult to replace and even harder to get past. Take your time to mourn his passing and allow the memories he gave you to be indelibly stamped on your heart!

    • #21465
      Halsey Blocher
      Participant

      I’m so sorry DeAnn! I know Roy was very special to you. Losing a beloved pet is always so hard.

    • #21483
      DeAnn R
      Keymaster

      Thank you all for the warm thoughts and support. I’m thankful for the 8 1/2 years he was a faithful service dog for me and the best companion a girl could ask for.   We plan on laughing about all his silly quirks around the Thanksgiving table.

      After discussing it with the vet, there isn’t anything more he can do to find out the cause unless we bring him down to the cities for an autopsy. We decided against that.  The vet said most likely it was heart related due to the sudden nature of what happened.  We buried him next to my first service dog Iken. We plan on having his name carved in a fieldstone as we did with Iken.

    • #21502
      Mike Huddleston
      Participant

      Very sorry to hear of your loss, DeAnn.  RIP Roy.

    • #21508
      Losmi
      Participant

      DeAnn I am so sorry for what happened, and the way it happened.

      I don’t have kids, and don’t plan on having them, but I had experienced loss of animals that I had a privilege to share life with and it is very painful.

      I do believe in reincarnation and since Roy spent his life in more meaningful way then most humans I really hope he will get exquisite next birth.

      All the best to you

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