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  • Columnist Writes About “Finding the Sweet Spot”

    Posted by kevin-schaefer on June 12, 2019 at 7:00 am

    Hey everyone! Hope you’re all having a great week.

    Check out my latest column here. I had to get bloodwork done a few weeks ago, in preparation for my eighth Spinraza injection. Finding a vein to draw blood from is tough for a lot of us. Fortunately though, this particular appointment went great.

    This situation made me think about the idea of “finding the sweet spot.” I wrote about how this concept applies to positioning in my wheelchair and bed, working at my computer, and other things. I hope you enjoy.

    Can you relate to this notion? Do you have any other examples?

    kevin-schaefer replied 4 years, 12 months ago 4 Members · 6 Replies
  • 6 Replies
  • tracy-odell

    June 12, 2019 at 7:12 am

    Wow! I can certainly relate!

    • kevin-schaefer

      June 12, 2019 at 11:35 am

      Thanks for the feedback! Yeah it’s crazy how many scenarios this idea applies to.

  • losmi

    June 12, 2019 at 10:06 am

    Nicely wrote column Kevin, lots of humor, but ”Lexington, Kentucky” line was the best one for me:D Is Lexington, Kentucky really notorious for accessibility, or is it like generally one should not expect many accessible sites in Kentucky state? Whatever the reason is, I like how the whole sentence sounds.

    So as I said I like the humor, but it is really kind of text that shows how much trouble people with SMA have to go through every single day.

    • kevin-schaefer

      June 12, 2019 at 11:42 am

      Thank you!

      And yeah my parents and I were in Lexington in May, which I wrote about. Oy. it was a hassle.

  • deann-r

    June 12, 2019 at 4:33 pm

    I can certainly relate. A few years back during a hospital stay I questioned if I’d ever be comfortable again. It’s also why I’m hesitant to get a new chair. Luckily most people understand that I’m seated for an extended amount of time so it’s important to be comfortable. I try not to be too picky though.

    • kevin-schaefer

      June 18, 2019 at 12:56 pm

      I hear ya. I try to hold on to the same chair for as long as possible. Getting comfortable in a new one can be tricky!

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