Our brand-new accessible van has a broken door — the door on the ramp side. For now, we cannot take Ella’s power wheelchair when we go anywhere. Fortunately, she has a manual wheelchair to use. We pull out the van, lift Ella onto the back seat, and place…
My parents recently went on a trip and left me to fend for myself. I’m kidding. My sister was with me. We’re perfectly capable of fending for ourselves and survived purely on junk food, takeout, sugar — and caffeine. (Just kidding, Mom.) My parents need to travel on their own…
It’s Sunday night, and I’m surrounded by an assortment of books, comics, DVDs, Blu-rays, action figures, and other items that one might find in a 5-year-old’s room. The only outlier is my framed college diploma, which hangs right next to a giant Batman poster. Indeed, this…
The first day of fourth grade was wonderful for Ella. She woke up early and I got her dressed and ready to go. Along with her brother and sister, Ella posed for the annual first-day-of-school photo before leaving. Henry, 10, Ella, 9, and Ava, 12. (Photo by…
Three days from now, on Aug. 23, I will be doing my first book signing. As I previously have mentioned, my first book, “Witchcraft and Monsters,” was published in January. I now have this amazing opportunity to see what a book signing is like. My…
It was my last semester of college, and I had room for one more writing class in my schedule. I already had two film courses, a literature survey, a fiction-writing workshop, and a general education requirement I had put off until the last minute. (You could say that…
In case you’re wondering, the miraculous acne medication, Accutane (isotretinoin), is as fun as it sounds. Accutane is a six-month program, which means I have three months left. The medication is definitely…
Being sick tends to take a lot out of people with SMA, and the healing process is often slow. A few days after returning from a family vacation this year, I started to feel ill. My heart rate was quickly rising and I had a slight…
“Raise your hand if your return to reality has been a struggle.” That was the text I received moments after being set up on my phone to write this column. I had to chuckle. My best friend was referring to the weekend we had just spent at the coast…
If our daughter, Katie, had arrived on her due date, I’d be writing about her birthday instead of her decision to hold off a few days — eight, to be precise, but who’s counting? I’ll tell you who was counting back then — I was. I was…
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