Columns

Counting to 22: Each Year Is a Blessing

As my 22nd birthday rapidly approaches, I almost can’t comprehend it. The thought of my birthday has seemed surreal for the past several days. To most people, turning 22 probably isn’t that big of a deal. You don’t get to do anything new. Your friends start to tease you about…

Finding Humor in Stinky Situations

I always get hit with a wave of back-to-school nostalgia when September creeps up on the calendar. The days of shopping for supplies, picking out a first-day-of-school outfit, and being excited and anxious about the year ahead are a distant memory. In today’s column, I’m going to share one…

Déjà Vu and a Second Chance at Missed Memories

When my husband, Randy, and I decided to expand our family, I promptly became pregnant … and miscarried. Optimists, we tried again. And again. Meanwhile, we returned to school for teacher certification and accepted teaching assignments in Columbia, South Carolina. We were blessed the following summer with…

Ella Takes Another Trip to the Emergency Room

We rolled up to the emergency room for the second time this month. The first time, Ella had broken her left foot. Now we were there for the other foot. This particular afternoon, Ella had been playing with her brother, Henry, and his friends. She…

Spinraza Has Impacted My Life More Than I Thought

Lying on my couch one day in late August, I thought about how the previous weeks had been unexpectedly challenging. I was watching one of my favorite (albeit trashy) reality television shows. I’m not big into TV, so when I watch it for hours something is up. When my mother…

Ella Discovers a New Talent for Songwriting

Music helps us to express our feelings, dreams, and aspirations. Ella has been to several Young Naperville Singers rehearsals and is loving it more and more. She can’t wait to get there and doesn’t want to leave when the session is over. One evening,…

I’m a Work in Progress, and That’s OK

A few weeks ago, someone posted a question in a Facebook group for people living with neuromuscular conditions. The question, composed of a few simple words, prompted me to stop and think. How’s your life going right now? A question like this should be…