Columns

Storms and SMA: The Opposite of a Love Story

When it comes to storms, I’m a dog with high levels of anxiety. Don’t get me wrong, I love the rain. A gentle rainfall is the perfect backdrop to at least half of my favorite activities. But storms are a different story. Storms are thunder and lightning and impending…

Why I’m Sticking to Spinraza for Now

It’s officially August, which is kind of hard to believe. Nonetheless, many people in the SMA community have anticipated this month for quite some time. Not only is it SMA Awareness Month, but it is also when the U.S. Food and Drug Administration was expected to…

Facing My Fear of Surgery Through British TV

I was a bit of an Anglophile in high school. I was obsessed with anything produced by the BBC — “Doctor Who,” “Sherlock,” “Merlin,” even the 2006 retelling of “Robin Hood.” It didn’t help that my best friend lived in Scotland and often spoke in British endearments. I was thoroughly…

I’m Learning to Balance Rest and Productivity

I’m a productivity geek. I’m not content with simply doing things. I want to do them well. And I want to do as much as I possibly can in the time I have left. Productivity has served me well. Over the years, productivity has gotten me a bachelor’s degree in…