All my life I’ve been freakishly in tune with my body. It sounds like a great quality to have, right? I’ve always been hyperaware of my symptoms and can spot when something in my body feels off. This bodes well when it comes to viruses and other types of illnesses…
Anyone who knows me knows that sports are my favorite thing in the world. Although football is my most beloved sport, basketball has a more personal element to it. For starters, you can see the players more clearly, as they’re not covered with armor like in football. It’s also…
After the delivery of our baby Jeffrey, I failed to notice his abdominal breathing. My husband, Randy, possessed both an eagle eye and the presence of mind to ask the doctor and nurses about it. No one on duty seemed concerned, perhaps because Jeffrey had arrived two weeks early.
Ella spends a lot of time in the breakfast room just off the kitchen. She does her homework at the table, where there are pencils, pens, rulers, scissors, and paper. She plays with her iPad, talks with her friends on FaceTime, and eats her snacks.
For most of my adult life, I’ve been fortunate to maintain my physical health. Aside from a bout with pneumonia in early 2018 and a broken femur the previous year, I’ve experienced an overwhelmingly positive health streak since…
I feel like it’s been forever since I last wrote one of these things. It may be because between the holidays, the start of a new month, year, and decade, and school (which is frankly turning out to be the semester from hell), I feel a little bit…
Because of SMA, I have met people that I might never have crossed paths with otherwise. I’m blessed with the opportunity to connect with nurses, physicians, equipment providers, and other SMA families. I love all of these unique connections, but I especially cherish my relationship with my best friend, Kim.
Ella’s mom, Lindsay, had a complete knee replacement on Jan. 8. She stayed in the hospital for two days before being discharged. We set her up in a pullout bed in the family room while she recovered. The first week went well: She did her exercises, iced and…
Amid its heart-pounding fight sequences and images of Michael B. Jordan carrying car tires in the middle of the desert, the film “Creed II” offers a poignant representation of disability. In this umpteenth sequel to the original “…
As I write this, I’ve been home for 11 days. Actually, let me rephrase that. I haven’t left this house so much as to go outside to get some fresh air, feel the sunlight gently grace my skin, or see what the outside world has been up to for the…
Get regular updates to your inbox.