Tagged: Adults With SMA, Amazon Alexa, assistive technology, care package, Cure SMA, heat pads, support system, teens with SMA
- This topic has 15 replies, 5 voices, and was last updated 4 years, 4 months ago by
Kevin Schaefer.
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November 7, 2018 at 3:00 pm #15364
Cure SMA just launched a new support program for teens and adults with SMA. The first initiative with this project is a care package, which you can request here if you are a teen or adult with SMA: http://www.curesma.org/news/teen-adult-supportprogram.html.
Items in this care package include a heat pad, a telescopic back scratcher and an Amazon Echo Plus. I sent in a request for one of these packages this morning, and I’d encourage you all to do the same.
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November 7, 2018 at 3:09 pm #15366
That’s pretty cool. I just submitted a request as well.
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November 8, 2018 at 10:53 am #15383
Cool. Yeah it’s a good initiative.
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November 7, 2018 at 11:44 pm #15368
I was hoping for a private jet, but this’ll do. Very cool.
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November 8, 2018 at 10:56 am #15384
Haha.
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November 8, 2018 at 9:19 am #15380
Thank you for the heads up! I have requested this package, it looks great.
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November 8, 2018 at 10:56 am #15385
No prob!
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November 9, 2018 at 11:58 pm #15420
Looks like a great package. Unfortunately only available in US. Nothing like this available in South Africa.
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November 10, 2018 at 7:17 pm #15423
I do wish offers like this could be world wide. Do you have any SMA type organizations in South Africa? If so, maybe you could nudge them into offering something like this to those who would benefit.
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November 18, 2018 at 12:52 pm #15582
I am not aware of any Organizations in South Africa that would do something like this.
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November 18, 2018 at 2:02 pm #15583
I wonder if you could contact Cure SMA to ask if there’s anything they could do. They’ll at least answer your questions if you ask about receiving a care package. We had several international folks attend the conference this summer.
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November 16, 2018 at 2:25 pm #15573
Hey everyone, my care package arrived yesterday. It’s great! I especially like the sheepskin cloth, which I’m going to use for my chair.
If you haven’t already requested one, I highly recommend you do.
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November 16, 2018 at 9:22 pm #15574
I requested it today.
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November 18, 2018 at 2:03 pm #15585
Nice man. I think you’ll find it really helpful.
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