Viewing 6 reply threads
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    • #15364
      Kevin Schaefer
      Keymaster

       

      Cure SMA just launched a new support program for teens and adults with SMA. The first initiative with this project is a care package, which you can request here if you are a teen or adult with SMA: http://www.curesma.org/news/teen-adult-supportprogram.html.

      Items in this care package include a heat pad, a telescopic back scratcher and an Amazon Echo Plus. I sent in a request for one of these packages this morning, and I’d encourage you all to do the same.

    • #15366
      DeAnn R
      Keymaster

      That’s pretty cool. I just submitted a request as well.

    • #15368
      Ryan Berhar
      Keymaster

      I was hoping for a private jet, but this’ll do. Very cool.

    • #15380
      Dennis Turner
      Participant

      Thank you for the heads up! I have requested this package, it looks great.

    • #15420
      Chantell Venter
      Participant

      Looks like a great package. Unfortunately only available in US. Nothing like this available in South Africa.

      • #15423
        DeAnn R
        Keymaster

        I do wish offers like this could be world wide. Do you have any SMA type organizations in South Africa? If so, maybe you could nudge them into offering something like this to those who would benefit.

        • #15582
          Chantell Venter
          Participant

          I am not aware of any Organizations in South Africa that would do something like this.

        • #15583
          Kevin Schaefer
          Keymaster

          I wonder if you could contact Cure SMA to ask if there’s anything they could do. They’ll at least answer your questions if you ask about receiving a care package. We had several international folks attend the conference this summer.

    • #15573
      Kevin Schaefer
      Keymaster

      Hey everyone, my care package arrived yesterday. It’s great! I especially like the sheepskin cloth, which I’m going to use for my chair.

      If you haven’t already requested one, I highly recommend you do.

      • #15575
        DeAnn R
        Keymaster

        Mine arrived too! My fave was the warming neck wrap. Already used it! Really everything was great, well thought out products.

        • #15584
          Kevin Schaefer
          Keymaster

          That’s great! The neck wrap is great.

    • #15574
      Ryan Berhar
      Keymaster

      I requested it today.

      • #15585
        Kevin Schaefer
        Keymaster

        Nice man. I think you’ll find it really helpful.

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