Feeling the Spinraza Slump
Today I should have been sharing my latest column with you but, unfortunately, I had to take the week off because my body has been so weak. It’s amazing how much Spinraza helps me even though the improvements are minimal to the naked eye. I, myself, sometimes forget how much my body needs Spinraza to maintain my stamina.
It’s a scary thought— this idea that my body now relies on a drug to “keep up” so to speak. In April, I was a month late for my injection because of the pandemic, and I took a hard hit. I fear that will happen again this time as things are getting worse out there and I’m not scheduled to go until the 25th.
Fingers crossed all goes according to the original plan though. Do you experience a slump in strength/stamina when you’re nearing the end of your Spinraza cycle?