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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic contains 5 replies, has 5 voices, and was last updated by  Kevin Schaefer 2 months, 1 week ago.

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    • #20553
       Ryan Berhar 
      Member

      I was in Eugene for the Ducks game on Saturday, and it was raining ever so slightly at the beginning of the game. Thankfully, it stopped, but I actually got a poncho just in case. I don’t know how well it would have worked, but worth a shot. Have you used a poncho? Was it successful?

    • #20554
       Dennis Turner 
      Participant

      I have and do use a poncho.  Hate it and don’t find it very helpful. Usually I end up with plastic bags covering my joystick and my lefthand positioning control (bread bags work well).

      My understanding is that these are the most vulnerable pieces in terms of moisture. But again, what do I know?

    • #20555
       Halsey Blocher 
      Participant

      I have used ponchos on occasion. As most of us do, I generally avoid rain, but if I can’t avoid it, ponchos are an acceptable solution. I usually use one for myself and one to cover the chair. Whenever possible I pair the ponchos with a large golf umbrella.

    • #20569
       Ryan Berhar 
      Member

      Yeah, rain isn’t a big issue for me, as my hometown doesn’t get much rain. But I was curious anyway.

    • #20575
       Jim Schneider 
      Participant

      Always have a couple of bread bags in the backpack for the joystick.  Have a huge oversized poncho that will cover me and the chair if it was really really bad.

    • #20576
       Kevin Schaefer 
      Keymaster

      Good tips! I have used ponchos before, and I have one that’s soft and works great during the wintertime. It’s sort of a poncho/coat hybrid.

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