adam
Forum Replies Created
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I remember when I was 11 or 12 I sorta reasoned with myself that OK I’ll be physically weak but I’ll always be mentally strong.
I fell way short of that and fell into deep depression for years after some big things didn’t go well. I just didn’t care. Now I’m not as depressed and do care a bit so anxiety & regret has taken over.
Personally I think depression is easier, but not for your loved ones.
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I get it mate. Absolutely. I’ve always been my harshest critic but have eased up a bit. Every time I can’t do something but drives me mad and I usually wind up frustrated swearing at myself. If my body kept up with my personality it’d be great. It doesn’t. Overall I’d hate myself more than I loved me.
Yes I hate my body.
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I like messing with people so I’d absolutely go for moving things with my mind.
Also who needs physical abilities when you can shift things with thought? I’ll levitate my chair up stairs or mentally command that rib to hover in front of my mouth while I gobble away at it hands-free.
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Hot wheat packs. I’m guessing same or similar to your heat pads. On real crook days I’ll have 2 nuclear hot under my back, 1 down my sternum & 1 at the back of my neck/base of my skull. That’s real bad days but where ya can’t even entertain getting outta bed.
Other days when its bad but manageable its again hot wheat packs. Taking pills makes me feel sick & usually gotta chew them which isn’t fun otherwise its a lottery if I swallow it successfully. So pain killers are an absolute last resort before an ambulance (which is free here).
Marijuana helps too. Majority of pain I get is muscles tightening & feeling stretched or pulled everywhere. The right blend & couple beers will melt me into my chair & good playlist makes it drift away.
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Wrap the towel over the new thing?
Never had skin probs till recently. Mum said the other day “your toes look like 50,000yr old crocodile skin at a museum”. I looked down & she wasn’t wrong lol I just don’t care anymore. Used to be a gelled hair, cologne drenched, dressed up pretty boy with a fat head but now I’m good in trackies (sweat pants/top) and cap with a squirt of deodorant. Still got a fat head.
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Wheelchair reps are generally good people happy to provide a good service but really bloody difficult to nail down.
Like that friend who says they’re 5mins away but ya know they’re not even outta bed yet lol.
Keep on ’em DeAnn. Squeaky wheel gets the oil.
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Wow! Yes!
I had my best mate stay for a week & he remembers so much that I don’t. But he doesn’t really remember my rough times.
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Organisation has never been an area I’m good at. But I know where everything is unless someone moved it.
“That thing 3 things to the left of the roundish thing … nup .. nup.. your other left and down a bit. Aye! That’s it!”
I’ve always had a good observation. My grandmother was a snoop and I’d always know if anyone had been in my stuff because I left things “my way”.
It became like a game if mum would tidy my room. She’d try to put everything back perfectly and I’d come home and spot all she touched.
As for clothes back when I cared I remembered my wardrobe. I’m retired now and dress like it lol anyone in Oz needs shirts & ties (so many ties, I loved ties) hit me up – matching cufflinks for some too.
Of course, I know where they all are. Unless someone moved it.
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Never really bothered unless I was gonna be out in decent rain for a long period like a football game/outdoor event. Only time I had a problem was nearly 20yrs ago in high school some water got in because the rubber skirting around the joystick was ripped up. Otherwise never had a chair complain about the rain.
But I don’t do shitty weather anymore so no longer an issue.
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I’ve got a back scratcher that’s extendable almost 2ft. Originally purchased for it’s obvious use but I’ve found the claw scratchy bit hooks things well so I can slide a tray, plate, remote etc closer. The handle is a slightly textured rubber so I can flip it & use it to press light switches since its grippy & doesn’t just slip off the smooth switch. Once I’d laid my seat back & fell asleep, woke up & my hand had fallen off the control so was stuck unable to sit up to reach across with my “good” arm. Managed to grab my scratcher & use it to sit the seat up.
I’m with DeAnn; scissors or a flat head screwdriver for cans.
Sturdy small boxes get kept as desk level raisers. So my desk is good a good height for using a mouse on but too low to lift a drink from so a sturdy box about 5″ high is light enough for me to move as needed & when I spill stuff on it I can throw it in the recycling.
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hahaha that’s brilliant. Thanks Alyssa I hadn’t seen that before.
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Some days just getting outta bed is a bridge too far as well.
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I’m the same. I’ve gotten rid of 2 support workers in the last 8mths because they couldn’t shut the *cough* up.
Just put me in the sling, hose me down in the shower & pump me full of coffee. Then we can say “good morning”.
I don’t think that is unreasonable; most people get up & shower before interacting with others.
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Great post, Losmi.
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haha it’d be great! Ask someone to pass something then move it just as they go to grab it. They’re like “you see that?” you’re like “see what? you’re crazy!”
I’d be at the casino playing dice games for sure.
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A few years back I went on a health kick. Nearly choked to death 3 days in on a bloody multi-vitamin!
The few moments I couldn’t breathe the only thought I had was how ironic it’d be dying taking healthy pills.
I grabbed a beer & a cigarette & got back in my lane lol.
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Deepheat? Dencorub? Not sure what the US equivalent is.
Ya rub it into sore spots & it’s got a cold hot soothing. Keep away from eyes & genitals. You know the sorta stuff.
But TB has some Asian (I’m feeling its Malaysian but can’t remember) magic in it. Just the smell is calming.
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Absolutely that makes sense, mate. Been there myself more than once on various things medically & recreationally. Especially if you dunno what you’re in for the panic is a natural reaction and oh boy its full on.
I’d say have a dabble if you’re curious & think it could help. A mild blend indica dominant and small dose worst that’ll happen is you giggle a bit and fall asleep. Beat any panic which will start simply because your brain will be experiencing something new and that brings a level of panic by reminding yourself its a plant that grows outta the earth & no one has ever died from too much weed.
If ya try it, do it with good positive people & vibes; music, chilled, some munchies. I’d avoid edibles to begin, the high can last 8+ hours which sux unless you’re enjoying it. The gummy bear may look more innocent than the alternatives but don’t be fooled.
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How did I forget Tiger Balm? Awesome stuff!
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Not really. They’re a reminder. They represent an identity I don’t have anymore.
Same with jewellery. I love it & spent heaps on it but it doesn’t “fit” me any more.
Becoming a lot less about material things.
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You’re not wrong, mate. Great community here.
Minestrone please lol
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Cheers DeAnn. Absolutely! My god I miss being able to clench a proper fist let alone the strength to throw it at a wall.
It’s beyond ridiculous. Like do we lose a key ingredient to being worth help after our 18th bday?
Spinraza is still the same.
That does make me feel better a bit & yeah I’m resigned to be a thorn in their sides for which I’ll never reap rewards myself but hopefully its easier for the next person as a result.
In hindsight if I knew this decision was coming I shoulda defrauded the disability insurance scheme for years to fund my own treatment. What they gonna do, jail me? lol
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Thanks Alyssa. TBH here’s the only place I vent that stuff & feel anyone has any idea what I’m saying. This news dropped 2 days into having my best mate travel 2000kms to come spend a boys week full of beer & fun & it pissed me off extra for putting a downer on me. Can sorta tell him but at the same time I hate to put my shit on anyone else – had to fake a sore back today just to go sit in the dark by myself & shut the world off for an hour to reset.
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People who “over encourage” get told in no uncertain terms to stop. I know what I want, its not to be submerged & helpless in a body of water!
You’re only disappointing yourself if you don’t do what makes you comfortable. Everyone else’s feelings about you having a swim don’t mean shit mate.