pamela-muhammad
Forum Replies Created
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I use a regular seatbelt that came with the wheelchair, and I only use it when I ride the bus. And also, there’s a padded siding on my right ribs that gives me some support.
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It’s very difficult these days getting adequate care as I get older especially since covid’s epidemic 2022. There is a shortage of caregivers because they’re getting more by the government free services or other jobs are paying higher salaries. Family members are taking care of their immediately family members, friends are far and between, so therefore many of the caregivers that the agencies hire are lazy and doesn’t have patience nor the proper skills to be a ‘good’ caregiver /pca! There’s not much that we can do except pray, strive to work with whomever is available to work!
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Good morning Kevin,
I know that life chances for everyone ,however it doesn’t make it easier to accept some random strangers into come to my live as caregivers to help us to do or in most cases to complete do my daily hygiene , cooking and cleaning …etc., I literally hate it when my good , caring caregivers have to leave for whatever reason, it sucks and it can be very stressful! But regardless of how much that I don’t like having to get use to different caregivers (mostly lazy insufficient ones) that’s part of my life. However , I strive to make the most of it by praying , staying positive and keeping busy. (Smiles) Side note I’ll like to possibly be interviewed on SMA Podcast.
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Yes, I make myself take breaks because I work so hard to do so much personal wise and business. However, I am learning to enjoy a movie, music and something to bring me some happiness.
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I am interested in wanting to know more about it,but unfortunately the M D A office isn’t answering calls nor my doctor.
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I am hopeful always because that is my nature. But I don’t want anything that is painful or has too many dangerous side effects, if th that’s the case I would rather just deal with SMA. But I am open minded. Thank you for sharing.
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I hate the term “medical unnecessarily” just because it’s not medical doesn’t mean it’s not greatly needed.
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Good morning. I agree with you that being disabled and having to depend on others is quite a task itself every day of my life. I use an agency and the benefit of that is that they I have more of the responsibility of hiring and firing qualified caregivers although most of the time they aren’t qualified at all. It’s absolutely ridiculous of some of the type of people that they choose to administrate care. And though I’ve heard of cdcs also I was told that the client has the responsibility of panda payroll I’ve two of them their own caregivers and as well as administrator that care and I don’t know if I have the time or the patience to do all of that so I too would like to know more before I make the major adjusted change of changing into that services. Thank you for sharing this it is quite interesting to say the least. Have a great day.
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Hi Alyssa! I enjoy singing ,listening to music, writing , reading , watching my favorite youtube channels of fashion, singing, arts, cooking, hair & beauty etc and I also enjoy being alone with my thoughts until I need assistance…smile.
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I am late responding , but thank you guys for sharing! I am interested in getting married one day ,but I am in no rush because I am learning to love myself first and staying positive. Thank you all for sharing great experiences.
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Hi that’s awesome and congratulates! I would to a start a business can you give any tips or experiences, was it very difficult to start your businesses ?
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Hi I love Amazon and of course I was excited about prime day. I am interested in buying two items the ‘hand warmer and Alexa show ‘ Do anyone have these two items ? If so please share your experiences with them. Thank you!
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<p style=”text-align: center;”>Hi DeAnn congratulations on getting your chair so quickly. It usually has taken me a couple of months to get my wheelchair. And although I enjoy getting a new chair, it can be very frustrating getting used to sitting in it. But hopefully that will Not be your case LOL</p>
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Hi DeAnn congratulations on getting your chair so quickly. It usually has taken me a couple of months to get my wheelchair. And although I enjoy getting a new chair, it can be very frustrating getting used to sit in it. But hopefully that will be your case LOL
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<p style=”text-align: left;”>Hi everyone! Thank you all for sharing your experiences of employment Etc. I have been trying to get employed for years ,but unfortunately I haven’t officially gotten employed as of yet, however that hasn’t stopped me from creating a bit of income on my own. I have written two books. “Pam-Allah’s Poetry of the Heart” and my most recent book /”Loving the Skin I’m In/Visions of My Life/” which I am extremely proud of. I would also like to have a part-time job to make more money. So could you all please share your employment experiences and what do you do at your jobs ,your businesses, websites nonprofits Etc thank you so much have a great day.</p>
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Sounds great for those that like company, to socialize etc. I’m a more private person. But best wishes. 😊
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<p style=”text-align: right;”>To each’s own, as I stated in my previous commitment I personally would not want my husband to be my only caregiver,because I feel  that all couples in relationships need  some “me time”  or “alone time”! Because we would run each other nuts..lol ( or nutter..lol)) However whomever disagrees and believe the opposite go for it!! But I like my private time we’ll the little I have , being that I already have 24)7 care! I have to go in the room to get a break from them!!! </p>
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This is a very important topic for me, because someday I hope to get married. And I thought about this over and over again I would like to have additional caregivers ,but I know that my husband he would have to take a part in  my caregiving! Because I believe that everything has to be balanced to be healthy. And I do know other couples  that are married and caregivers to their spouses and that is fine, whatever works for that person, I do not judge that. So I have to get these links and probably will be back with more opinion. Smiles 💖
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Thank you for sharing! Much success! Do have Facebook messenger!?
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That’s so cool! How long have you been working on your comics and when do you expect it to be finished?
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Wow that was a fast response! LOL. Thank you Kevin I appreciate the feedback. I will look into possibly blogging Etc. Do you have your comic books published?
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Hi it’s me again I made some errors on my first post! And I didn’t see a place to correct it  I am rewriting tocorrect some of my arrows. I meant I cannot use my hand well so I am speaking into my phone.  Are there any devices or technology that can help me to write more distinctively and faster? And also any information that you can give about freelance writing will be greatly appreciated! Have a great day!
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Hi Kevin! Thank you so much for writing such great articles that are very helpful in the SMA community!( I really enjoy your writings!!) I do enjoy  writing too,band I have been looking to make extra 💰 now I love to learn more about freelance writing in general! Could you please share some ideas of how to get started and also what do you use to write? I cannot use my hand very much I am not speaking give me the phone and it writes what I say. So any information that you are others can share on it getting started of being a freelance writer would be greatly appreciate it. Have a great day! Smile
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Hi I agree for that matter the media /or society in general wants to stereotype all of us in one category of not being inhumane! It’s good hear to successfully relationships stories like yours. My life is so busy that I don’t focus on having a romantic relationship though I’m human and I love men (smiles) I am not going to worry about it, if it happens it happens if not I’ll be ok! 🙂