Combating Stomach Issues with SMA
For most of my adult life, I’ve been fortunate to maintain my physical health. Aside from a…
Articles by Kevin Schaefer
Rare and Resilient: My Adventures in Philadelphia
Amid its heart-pounding fight sequences and images of Michael B. Jordan carrying car tires in the middle of…
Let 2020 Be the Year of Disability Representation
I just finished watching “The Ataxian,” a documentary from 2015 about Kyle Bryant,…
The Humorous Interactions That Stay with Me
A few months ago, my colleague Brianna Albers wrote an excellent column about…
A Robot Named Otto Transformed My Life
Four years ago, I put on my big-boy pants and finally learned how to feed myself. Throughout my…
The Movies that Made Me: Life Lessons and SMA
During the recent Thanksgiving holiday, I spent a lot of time reading, going to movies, and streaming shows…
My 10-year Challenge: Reflections on a Decade
If you’ve been on social media lately, you’ve probably seen a flood of posts with the hashtag…
My Rare Disease Family Goes Beyond SMA
Just a couple of years ago, I knew little to nothing about cystic fibrosis (CF), a genetic disease…
The Art of Rejuvenation: Time with Fellow Comic Nerds Inspired Me
My computer screen stared at me as a wave of unread emails and messages flooded my inbox. I…
My Quality of Life Is as Important as My Physical Health
Recently, I spoke with my friends Jim and Becky Berry on the SMA News Today…