Kevin Schaefer
Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, BioNews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.
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Articles by Kevin Schaefer
Dreading the Bed: Sleep Brings Vulnerability
“So, do you sleep in your wheelchair?” Believe it or not, I have been asked this…
How to Hug a Wheelchair User with a Robotic Arm
Of all the technologies that I use in my everyday life, the two most important ones are my…
I Treasured Every Moment of Hanging Out at the SMA Conference
“Dude, use your robotic arm to grab my leg!” Superstar blogger Shane Burcaw…
Flying with a Disability: National Lampoon’s Airline Extravaganza
Thanks to the fine folks who handled my wheelchair at the airport a…
I’m Learning to Recognize My Own Limitations
Since I started receiving my Spinraza (nusinersen) treatments in November 2017,…
My Bobblehead Days Are Behind Me
One of the ways that spinal muscular atrophy (SMA) has affected me physically…
Finding the Sweet Spot
A few weeks ago, when I was preparing for my eighth Spinraza injection, I had…
Research Advancements and Adults with SMA
On May 24, Zolgensma (previously known as AVXS-101) became the second FDA-approved treatment for SMA…
Staying Home Alone When You Have SMA Takes Planning
Those of us who have SMA live surrounded by other people. We rely on others to…