Grandma Challenges SMA
Editor’s note: Columnist Michael Casten continues his “Family Perspectives” series by interviewing Ella’s grandmother. In this series, Casten…
Articles by Michael Casten
A Hug for Grandpa
Editor’s note: Columnist Michael Casten begins his “Family Perspectives” series by interviewing Ella’s grandfather. In this series, Casten…
An Intro to the ‘Family Perspectives’ Series
SMA affects the entire family. Sometimes it’s obvious, and sometimes it’s not. Either way,…
She’s 7
Ella sits in her wheelchair crying. Her mom is right there with her holding…
Growing Up: Ella Goes Solo
It doesn’t happen often, but it does happen. Ella had the pleasure of being…
The Challenges of Parenting a Child with SMA
Each morning, either my wife or I help Ella get dressed. During the school…
Joining the Fun
Surrounded by kids, friends from school, camera pointing at them, masks on, and backdrop chosen. A birthday party…
Balancing Act
“Whoa, Daddy, Daddy!” Ella exclaims as I sit her on her bath chair.
Shining Siblings
Ava and Henry slept over at a friend’s house across the street. They had…
Post-surgery Recovery: Ella Is Truly a Champ
The healing process is long and arduous. Positioning is critical, medications are imperative, and…