Answering Ella’s Toughest Questions
Seven-year-old’s question everything; it’s part of how they learn about the world. Ella is no…
Articles by Michael Casten
Machines are Just One Part of Caregiving — 24/7/365
Our nights are broken up by machines beeping, or Ella calling for us to…
Adjusting to Overnight Feeding and More Solid Foods
Ella has lost five pounds over the past month, which has been the result of…
She’s Musical
Ella sits in the waiting room every Monday at 3:30 p.m. as Ava and Henry receive their instrument…
Fear of ‘Kneebolizers’ Vanishes in Expert Hands
Ella has been in physical therapy (PT) and occupational therapy (OT) most of…
New Wheels for Ella
“How come Ava and Henry get to go to their friends’ houses and I don’t?” cried…
School’s Starting, and Ella’s Progress Makes That Even More Exciting
Ella’s excited to start school. She adores her school, her teachers and her classmates. Now that summer is…
Someday
“I’m sorry you have SMA,” Lindsay said to Ella. “Me too,” I echoed.
The Freedom of Water
Bathing suits, sunscreen, towels, and water. The key ingredients for some summertime fun. Almost…
Playing Her Way
Children engage in all kinds of play throughout the day, from quiet play to…