Columns

How a Stranger’s Words Pulled Me Out of a Rut

I always struggle with mental health at this time of year. Winter has that effect on me. Each year, I tell myself things will be different, so I map out a game plan for avoiding falling into my yearly rut. Podcasts are queued, books patiently wait to be…

Ella’s Smooth Clinic Appointment

An early morning rain lent itself to the Chicago traffic. The highway was backed up for miles and we had an hour to get to Ella’s Muscular Dystrophy Association Clinic at Lurie Children’s Hospital. Every six months, Ella has to go and…

A Different Kind of Valentine’s Day

Full disclosure: I think Leif Erikson Day is far more legitimate than Valentine’s Day. Even though its popularity stems from the fictional universe of “SpongeBob SquarePants,” at least its origin isn’t directly linked to a beheading. Though I do think…

Finding Joy Amid Career Changes

It’s been a hard week. Half because I’m an emotional kiddo who takes everything twice as seriously as I should, and half because my life is changing in some very big ways. Just now, I told my Google Home to play…

On Hiring New Caregivers

Recently, one of our columnists, Kevin Schaefer, took to the SMA forums to discuss his experiences with hiring new caregivers. His portrayal of what these experiences entail certainly resonated with me, especially during this particular season in my life when I also am beginning to hire new…

Advice from My Best Friend

Last in a series. Read parts one, two, and three. To wrap up this series of conversations with people close to me, I interviewed my best friend, Sam DeVos. Sam is one of the most positive, optimistic people I’ve ever met, so I thought perhaps…

I’m Ready for Whatever the Future Brings

I sat down this morning with the intention of writing a completely different column. Something about tattoos. I’ve been trying to get one since 2015, and finally, after years of searching, I’ve found an artist with my dream art style who works in a semi-accessible building…

A Perspective from an SMA Father

Third in a series. Read parts one and two. In the following interview, I’ll explore how SMA impacts the way people perceive me, as well as share valuable advice for families with a loved one newly diagnosed with SMA. I interview my friend, Jakeb Klein, whose…