Replies – Forums – brianna-albers – Page 2

brianna-albers

Member

March 1, 2021 at 3:23 pm in reply to: Evrysdi Denial

Several people over the age of 25 have been approved, so I’ll definitely be bringing that up.

@DeAnn – All of the letters have come from CVS! Cigna is my primary but I get prescription drug insurance through CVS Pharmacy.

brianna-albers

Member

December 9, 2020 at 2:50 pm in reply to: Columnist Writes About Disease Progression

Wow, thanks for mentioning birth control, y’all! I considered going on it to help with acne but decided to try Accutane instead. I’m going to talk to my PCP about it!

brianna-albers

Member

November 18, 2020 at 6:46 pm in reply to: Friendsgiving?

It’s wild how quickly things can change, isn’t it? ???? I scrapped my Friendsgiving plans the minute the cases started to rise. Hopefully next year!

brianna-albers

Member

November 10, 2020 at 6:37 pm in reply to: DNA Test

Thanks for the comments, y’all! The test was super easy – they sent me a saliva kit in the mail. I just got a voicemail from the genetic specialist, so hopefully I’ll find out soon!

brianna-albers

Member

November 2, 2020 at 10:48 pm in reply to: Caring For Cat In Recovery

Ooh good to know! I actually got Rey a surgical suit and I think she likes it better than the cone!

brianna-albers

Member

October 20, 2020 at 4:28 pm in reply to: Looking for a Social Worker

I actually went through them and they weren’t much help. 🙁 They pretty much just gave me a number for a social worker, which was a dead end.

brianna-albers

Member

October 20, 2020 at 4:27 pm in reply to: Looking for a Social Worker

@Kelly and DeAnn – Finances, insurance, caregiving, life planning, etc. I’ve tried to take control, or even just learn what’s necessary, but my mom… likes to be in control, and just thinks it’s easier to do it herself, lol

brianna-albers

Member

October 13, 2020 at 4:17 pm in reply to: Columnist Writes About Neurologist Appointment

Omg that’s SO frustrating! I saw Dr. Alan (Allan, maybe? not sure), who referred me to the pediatric side of the clinic at UMN. I’m waiting to hear back. The genetic specialist found my paperwork but I’m waiting on a callback from her as well.

brianna-albers

Member

October 7, 2020 at 2:58 pm in reply to: Tips for Dealing With Congestion

Oof ???? Yeah, I have a lot of sinus pain/congestion, especially with my seasonal allergies. I’ve tried all sorts of meds, too, and none of them seem to help much. Sudafed is usually my go to.

brianna-albers

Member

April 6, 2021 at 4:24 pm in reply to: SMA and Nighttime Hallucinations

As far as I know, no, they’re not related! Hypnagogic hallucinations affect a lot of people, similar to sleep apnea.

brianna-albers

Member

March 29, 2021 at 4:31 pm in reply to: Columnist Writes About Throwing Away Her Vaccine Shot

Oh wow! So sorry to hear that. It seems like it hits everyone differently!

brianna-albers

Member

March 29, 2021 at 4:30 pm in reply to: Columnist Writes About Throwing Away Her Vaccine Shot

Moderna!

brianna-albers

Member

March 8, 2021 at 3:03 pm in reply to: No-Touch Forehead Thermometer

This is the one we have: https://www.target.com/p/fltr-no-contact-infrared-digital-forehead-thermometer/-/A-80635359. It’s worked well so far!

brianna-albers

Member

February 17, 2021 at 3:53 pm in reply to: Columnist Writes About Internalized Ableism and Belonging

Hey! Thanks for sharing. I can definitely see where you’re coming from – it can be frustrating when people invalidate your feelings by labeling it as an internalized ism. Personally, I believe isms manifest in vastly different ways, so it’s always important to prioritize what people think and believe about their own experiences. One of my favorite sayings I retained from grad school is we’re all experts on our own lives, which feels applicable here. Any sort of internalized ism requires nuance and the ability to respect other people’s point of view so I’m glad you brought it up!

brianna-albers

Member

February 17, 2021 at 3:33 pm in reply to: Disability Representation in TV’s “Lost”

I’m so glad you feel represented by his story! That’s great. I do think it’s important to acknowledge that everyone has a different relationship with “disability,” which is what makes “disability representation” so difficult to pin down. Our stories are so diverse that it’s impossible to capture everything that disability is to people in a single storyline. Which is why I love talking about stories and understanding how they impact people in different ways – everyone’s reaction is valid. Thanks for sharing!

brianna-albers

Member

February 17, 2021 at 3:27 pm in reply to: More Evrysdi Issues

I do! I spoke with them and it looks like I’m not eligible for financial assistance, so we’re going the insurance route – again. I’ll keep you updated!

brianna-albers

Member

February 17, 2021 at 3:25 pm in reply to: Columnist Writes About Frozen Breakfast Food and Rediscovering Old Joys

Aw! I love this, Kelly. It really is amazing what sticks with us. Also, I gotta say – meatloaf and mashed potatoes sounds so good right now!

brianna-albers

Member

January 27, 2021 at 1:55 pm in reply to: Help me figure out how to celebrate graduating?

Ugh, I’m so sorry to hear that! I honestly didn’t do much in terms of celebration – I’m pretty sure all I did was order a pie from one of my favorite restaurants ???? Is there a dessert you could make, or a movie you could watch with loved ones?