• All Discussions
•  alyssa-silva

  Prescribing Risdiplam

  alyssa-silva replied 4 years, 1 month ago 4 Members · 6 Replies

  Evrysdi (risdiplam)
•  alyssa-silva

  Advice for Parents and Caregivers

  alyssa-silva replied 4 years, 1 month ago 3 Members · 3 Replies

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  Getting Coronavirus as a Parent or Caregiver

  tracy-odell replied 4 years, 2 months ago 4 Members · 4 Replies

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  Most Accessible Vacation Spots

  alyssa-silva replied 4 years, 2 months ago 3 Members · 3 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Do you experience the Spinraza slump?

  alyssa-silva replied 4 years, 2 months ago 2 Members · 2 Replies

  Spinraza (nusinersen)
•  alyssa-silva

  Columnist Writes About His Daughter Being Wise Beyond Her Years

  halsey-blocher replied 4 years, 2 months ago 2 Members · 1 Reply

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  Coronavirus: To Fear or Not to Fear

  adnan-hafizovic replied 4 years, 2 months ago 5 Members · 8 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Tips for Playing with Children

  halsey-blocher replied 4 years, 2 months ago 5 Members · 9 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Towing Illegally Parked Cars in Handicapped Spots

  alyssa-silva replied 4 years, 2 months ago 5 Members · 6 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Columnist Writes About Being a Spotted Zebra

   alyssa-silva replied 4 years, 2 months ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Last Chance to Participate in #WhatMakesMeRareSMA!

   alyssa-silva replied 4 years, 2 months ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Sleepovers When Your Child Has SMA

  deann-r replied 4 years, 2 months ago 2 Members · 1 Reply

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  Columnist Writes About New Wheelchair Process

  deann-r replied 4 years, 2 months ago 4 Members · 3 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  My New Favorite Way to De-Stress

  halsey-blocher replied 4 years, 2 months ago 2 Members · 3 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  “What Makes Me Rare SMA” Initiative: We Want to Hear From YOU!

   alyssa-silva replied 4 years, 2 months ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Rewriting the Future of Airline Accessibility

  lupa-f replied 4 years, 2 months ago 3 Members · 2 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Wheelchair Cup Holders

   alyssa-silva replied 4 years, 3 months ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Columnist Writes About Losing a Pet

  deann-r replied 4 years, 3 months ago 2 Members · 1 Reply

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  Columnist Writes About Being In Tune With Her Body

  deann-r replied 4 years, 3 months ago 2 Members · 1 Reply

  Adults ​With​ ​SMA
•  alyssa-silva

  Vestibular Migraines

  halsey-blocher replied 4 years, 3 months ago 2 Members · 3 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Caregivers and your siblings

  halsey-blocher replied 4 years, 3 months ago 2 Members · 3 Replies

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  How do you explain the seriousness of getting sick to others?

  deann-r replied 4 years, 3 months ago 4 Members · 6 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Columnist Writes About Being Homebound

  alyssa-silva replied 4 years, 3 months ago 3 Members · 3 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Maintaining Caregiving Services

  alyssa-silva replied 4 years, 3 months ago 3 Members · 3 Replies

  Parents​ ​and​ ​Caregivers​