• All Discussions
•  alyssa-silva

  Any updates in the treatment pipeline?

  alyssa-silva replied 3 hours, 32 minutes ago 2 Members · 2 Replies

  Treatments and Research
•  alyssa-silva

  Are there therapists that specialize in SMA and grief?

  mike-huddleston replied 4 days, 8 hours ago 2 Members · 1 Reply

  Adults ​With​ ​SMA
•  alyssa-silva

  How can I get more involved with my young niece and nephews?

  alyssa-silva replied 1 week, 2 days ago 9 Members · 16 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  When was the last time you cleaned your medicine cabinet?

  alyssa-silva replied 2 weeks, 4 days ago 2 Members · 2 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Do you take anything for some extra strength and energy throughout the day?

  alyssa-silva replied 2 weeks, 4 days ago 6 Members · 15 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  What is the most accessible place you have traveled to?

   alyssa-silva replied 2 weeks, 6 days ago 1 Member · 0 Replies

  Welcome Lounge
•  alyssa-silva

  What are some of your sleeping hacks?

  alyssa-silva replied 3 weeks, 5 days ago 2 Members · 2 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  What’s something you wish doctors knew about your life with SMA?

  mike-huddleston replied 1 month, 3 weeks ago 3 Members · 3 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Is there anything you can do to improve swallowing abilities?

  replied 1 month, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Do you use (or know of any) voice recognition software for keyboards?

  alyssa-silva replied 1 month, 4 weeks ago 2 Members · 2 Replies

  Assistive Technology
•  alyssa-silva

  Do you ever feel burnt out by your medical needs?

  alyssa-silva replied 1 month, 4 weeks ago 5 Members · 8 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Where have you had the most success finding caregivers?

  Arty replied 2 months, 1 week ago 2 Members · 4 Replies

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  Any ideas on how to get more comfortable?

  deann-r replied 2 months, 3 weeks ago 4 Members · 10 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Do you own an RV?

  alyssa-silva replied 2 months, 3 weeks ago 3 Members · 5 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Do you have vestibular problems?

  alyssa-silva replied 2 months, 3 weeks ago 3 Members · 4 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Do awareness months make an impact on the rare disease community?

  mike-huddleston replied 2 months, 4 weeks ago 2 Members · 1 Reply

  Raising Awareness of SMA
•  alyssa-silva

  How do you prepare and/or manage anxiety before appointment days?

  replied 3 months ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Would a tongue-controlled mouse benefit you?

   alyssa-silva replied 3 months, 2 weeks ago 1 Member · 0 Replies

  Assistive Technology
•  alyssa-silva

  Checkin In: How are you?

  alyssa-silva replied 3 months, 2 weeks ago 2 Members · 2 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  How did you handle cold and flu season at school?

  alyssa-silva replied 3 months, 3 weeks ago 2 Members · 2 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Do you set New Year’s resolutions?

  alyssa-silva replied 4 months, 2 weeks ago 3 Members · 4 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Do you prefer to shop in-store or online?

  deann-r replied 4 months, 4 weeks ago 2 Members · 1 Reply

  Adults ​With​ ​SMA
•  alyssa-silva

  What are some tech items that make your life easier?

  Val replied 5 months, 1 week ago 6 Members · 12 Replies

  Assistive Technology
•  alyssa-silva

  Do winter coats hinder your ability to move your arms?

  eric-ovelgone replied 5 months, 1 week ago 8 Members · 16 Replies

  Adults ​With​ ​SMA