The Unexpected Feeling a Bookstore Gave Me
I was recently strolling through the best-sellers section of a bookstore and couldn’t remember the last time I had set foot in one. I had just stopped in for the Starbucks coffee. However, while…
Life, One Cup at a Time
— Alyssa Silva
Alyssa Silva is a writer based out of Providence, Rhode Island. She was diagnosed with SMA type 1 in 1991 when she was just 5 months old. Aside from writing, Alyssa is the chief creative officer for an intimates brand and runs a small business selling her artwork. In her free time, you can find her canceling plans to hang out with her golden retrievers, watching reruns of “The Office,” and convincing others why Taylor Swift is the greatest of all time.
Featured Post
What I hope you’ll understand this SMA Awareness Month
“Don’t worry, we all got the Alyssa lesson before we started working here,” the new fellow joked after having completed his second nasojejunal (NJ) feeding tube exchange on me. Though everyone in the room…
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I’m Learning to Find Gratitude in Unexpected Ways
In this season of giving thanks, I keep reflecting on the importance of gratitude. Gratitude greatly impacts our lives, but as someone with SMA, I’ve found the concept easier said than done. At the…
Autumn Brings a Bittersweet Feeling
It is truly the most wonderful time of the year. As you read these words, I hope that you are envisioning me spinning in my wheelchair, wearing an oversized cardigan with leaves falling all…
From Hospital Stays to Grateful Days
Last weekend, my friends and I celebrated my 29th birthday with a brunch that was arguably too classy for us kids. The Champagne endlessly poured, the laughter continuously ensued, and my heart overflowed with…
Faced with the Unexpected, My Family Had to Break Our ‘Sick Rules’
It has been a bizarre week in the Silva household. Come to think of it, “stressful” may be a better adjective to describe the energy inside our four walls. However, for the sake of…
On Fulfilling My Role as Maid of Honor
“Houston, we’re not in kindergarten anymore,” I said as we looked at our reflections in the mirror. My hair was carefully pinned back just right. My makeup was meticulously applied, and a Burgundy gown…
Embarking on the Journey to Find a New Wheelchair
“I was once the proud owner of a Jaguar,” is one of my go-to statements whenever I play “two truths and a lie.” If you haven’t heard of the game, it’s typically an icebreaker…
Finding Humor in Stinky Situations
I always get hit with a wave of back-to-school nostalgia when September creeps up on the calendar. The days of shopping for supplies, picking out a first-day-of-school outfit, and being excited and anxious…
Spinraza Has Impacted My Life More Than I Thought
Lying on my couch one day in late August, I thought about how the previous weeks had been unexpectedly challenging. I was watching one of my favorite (albeit trashy) reality television shows. I’m not…
How a Cup of Tea Helps Me to Grieve the Absence of a Caregiver
Over the winter, I drank a piping hot cup of ginger tea every night before bed. It was the only remedy that I could confidently say helped to lessen my…
Why I Have Such a Strong Affinity for Football
If you are an avid football fan like me, I have great news. We don’t have to endure a Sunday without football for the rest of the year! Typing this makes me giddy, for…
On Letting Joy and Pain Coexist
Last weekend, my cousin, sister-in-law, and I had a girls’ night out. We picked a spot in a cute, historic town, ordered espresso martinis, desserts, and cheered a summer well spent and our not-so-little…
