adnan-hafizovic
Forum Replies Created
-
Jenny Easy Pivot is real relief for you and I think every women need to have it.Also it would be easier for men when we need to have how to say big need.In any lift we can t to pull of our pants and right now to sit on shower chair.Only second solution is to wear diapers,but I don t does anyone use it of us with SMA.
-
I dont have Hoyer lift ,my is arjo max twin lift.I delight with them when we need to be transported we need just one person to manoeuvre.At Arjo all things is electric,and must tell I got him used, and was broken his battery didn t worked and my electric put other battery with larger capacity and leave option that if battery is empty I can turn on lift in a slot.When I got it I also havent belt for him,so I must find someone to made me,and I find person who made belt,I was finding on net some map with meassure and I satisfied with him.But in reality all these things lift,wheelchair and other things are so expensive.Because of that I usually buy these things used or buy to me some good people.
-
It would be real nice that some one write who are in clinical trials.How go in that clinical trials and others things.
-
I agree with DeAnn.We must that we dont eat late and spicy.I have sometimes similar problem and I use probiotic and hepls me.It is good to use time to time probiotics.And we must eat often small meals.
-
you mentioned recent suicide of celebrities,and I must admit only time that I thinked about suicide when was war in Bosnia and when my town was surrounded by Serbian and Croatian armies. In that time we havent food and enough weapons and it was heavy situation.If they came in my cities they ll kill a lot of innocent people.And if they come in my city I thought to kill myself.Luckily we manage to defense our city and thanks to US president Bill Clinton.After that I never thinked about suicide,and I never take pills for calmdown.But last years I start to feel little anxiety,similar like you Esther,so my doctor gave me Valium and I dont take it in big doses,but it helps me.
-
Its nice to do all that for your parents and caregiver.At least we can respect our parents and all people who helps us.
-
we usually in Bosnia built houses with at least two floor,my house has three floors so I m little secure and its on one hill.Deann is your house near river?If is then it is a little problem.Just don t be afraid,we never know where get started strong wind or flood.
-
Trough our lives friends goes because they get married or they find job in anotther city and we must find new friends.Kevin you gave good tips where can we find friends.
-
Good video Michael,I feel Cytokinetic will be more effective then Spinraza and less cheaper.
-
I think I was writing that one of my hobbies is find more friends with SMA on Facebook.Why I do that?I wanna know how they live and change our experience.For example I have more understanding to you DeAnn and you problems then some health friend.In Bosnia we say-Health man don
t believe or dont understand sick man. -
For me the best public tranport is taxi for disability persons.He came at your house drive all the where you want.But my problem is that kind of taxi I haven`t in my town.Hey does anyone have experience with travel with aeroplane?
-
Kevin when I drink I drink like a camel,lol,I drinked half of small bottle,just I don t have custom to drink one or two sups.DeAnn try to wear some nice and light hat,maybe will help you.
-
My main exercise is dress off and dress on,eat with my hands,anda classical exercise lifting hands and every day my mom streching my hands and she massage my hands and neck.Sometimes I don t feel good because I m tired and then I m not able to do all that.
-
I exercise every day at least 30 minutes.It is good exercise to doing any movement for example:I can dress of course I need more time to do it,eating and like you said DeAnn streching is very good and massage.
-
I dont use hospital bed,but maybe I ll use the in future.By hospital beds is big advantage that you can with remote controler raise itself from lying postion to sitting.
-
when is summer I dont go out until 5 pm.And of course I try to avoid to be on sun.Big problem is that we are sitting all day and sweat between legs.I have friends and cousins who wanna help me when I need to pee.Every hat is good for keeping warm.In Bosnia most old men wear some hat It was funny to me but now I understand him why they wear hats to keeping them for heat
-
I have a similar problem like you,but in summer when is hot my legs burning and too much sweating,but that is because we have weak circulation.
-
Like most of you I also stay in wheelchair all day.I get up from bed in 8:30 and in 11:00 Im allready in a wheelchair.I have luck that I can like Michael move in wheelchair.About 2Â Â o clock I find position to half liedown and in that position I can sleep 45 minutes,enough to rest my body.I like to go in bed earlier about 8:00.We must always to find time for rest.
-
This is really sad what kind of people has in this world.
-
Kevin like you said for your parents they are superheroes,I also can to say similar thing.Before five years my dad died and it was big big lost for me.Now I have only a mom and she is my mom and caregiver,I haven`t how to say regular caregiver.All things I do with my mom now and I have luck that my brother live near by and help me with his wife.
-
Main thing is to find boy or girlfriend.Other things ,where we go out or who will drive me to a date is secondary thing.When I had some dates in a past with girls,it was easy for me because I live in centre of my city where has few nice caffee bars or restaurants,so I was going alone in my electric wheelchair.Of course I had sometimes problems with bad weather but if we can
t to find today we had a date other day.One time I couldnt go because weather was cloudy and she came to my house and we were sitting in my garden and talk,and it was nice. -
If you say that series is good I
ll try to watch.Then Ill tell my opinion about Speechless. -
Michael when I was a kid I used to fo on fishing with my cousin.I really enjoy in fishing,but like you losing my strenght I loose really nice hobby.At least I can and I love to eat fish specially a trout.And I like to watch on documentary channels emission about fishing.
-
And Kevin do you have some recomendation for comics,In wich main charachter isn´t superhero who has supernatural ability?