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Technology to the rescue again, and I’m impressed this time. I have always been a Windows man, I got used to the plethora of utilities and programs readily available everywhere for just about every need you might have, and with Dragon being the best, and unfortunately, somewhat only full service voice program that totally controls the…

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I know they have been trying to perfect it for over 5 years, they continue to get investments into the company so I know they have a plan to release this at some point. I think they are really trying to make it ready to go out the door and have a really finished product before releasing it, but I hope they get there soon. I follow them…

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We will absolutely see some real advancements in the next 5-10 years for sure, the CES 2025 exhibit in Las Vegas showed off a wheelchair collision avoidance system that was able to automatically navigate around a series of walls with the driver simply driving forward. I’m also following the advancements of Naqi Neural Earbuds to hopefully one…

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Cannot find it by searching the Groups even with the exact title “Adults with SMA age 50 & over”. Tried different variations also, please provide the link

Alyssa, I never heard of the Across software before, seems like it’s been around for a while and maybe not as compatible between devices, but nice that you can use it for free for 30 minutes to try. Be sure to let us know your results.

But to actually answer the extra security features online, yeah I have trouble with those as well and they…

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For me, I have to do extra training now so I pretty much let them watch the entire process first, then I will have them come back and do it all themselves while another one of my aides is watching and helping when needed. Then, I finally let them try on their own and I will try to be very patient and slow and forgiving.

One of the best pieces…

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Are the symptoms any different this time around from previous strains?

I’m very intrigued on how Apple is going to get this to work with just the front facing camera, because most real eye gazing technology utilizes infrared transmitters and receivers to reflect the invisible light from your eyeballs and triangulate the location on the screen you are looking at. Until now, precise control was not possible with…

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It looks like Apple is continuing to push the envelope on making their products more usable for people like us. Some of these new features will be life changing for people who can no longer use their hands, including eye tracking, and allowing customized words and sounds to launch routines on your phone or iPad through Siri. This just might…

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I don’t know how new that treatment is, because I had something very similar performed on me with a speech therapist about 12 years ago. We were attempting to help me swallow food easier and we tried lots of different foods each time after the electrical stimulation treatment in the office. After doing it for several months I really didn’t…

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Care.com review:

I recently ended a one year subscription to care.com thinking that it would at least give me a fighting chance to find someone. Nope.

Biggest problem being that there isn’t a specific category that makes sense to “post” your ad in. Care.com seems to focus on specific groups, mostly Seniors who need care, and Children that…

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Have you ever tried one of the radiant big round disk heaters? They glow very brightly, which is annoying, but they are fabulous at heating just you up and not really the surroundings. They can be positioned 2 feet away or further and you can still really feel the heat coming your direction since they don’t have to blow air on you. They are…

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There is local Styrofoam recycling in a suburb about 15 miles away from me, they do an annual announcement to the nearby communities that they are available.  I saved up about 10 of my coolers and other random Styrofoam packaging and dropped them off for the first time earlier this year.  I’m just about ready to take another batch.

However,… Read more

51 years old heterosexual cis male here, struggled my entire life with finding a mate. It doesn’t bother me now, but in my late teens and 20s and even into my 30s I was extremely upset about it. Looking back, I believe what held me back was my own shyness and my fixation on un-obtainable individuals. I took rejection so personally and I… Read more

Weirdly, I struggle more sitting up nowadays, even though for almost my entire life it has been worse when lying down.  Ever since starting Evrysdi back in September 2020, I struggle coughing up my own phlegm without help, sometimes to the point where it’s dangerous.  But, at the same time, if I lay down and roll to my left side, a cough almost… Read more

Alyssa, no I have never heard of this diet but I was curious if you’ve ever tried Soylent?  It is much lower in sugar than anything else I have found, blends quite smoothly, and seems to have a pretty rounded nutritional portfolio.  The only thing I add is a daily liquid multivitamin, extra vitamin D, extra potassium, and extra non-soluble… Read more

I don’t have one, but I try to keep up-to-date on the new features they build into these things (some of which eventually trickle down to other android phones). Here are the newest features I know about:

‘Assistant voice typing’ in Gboard lets you dictate, edit text hands-free
https://wp.me/p9SZ9T-1VR4

‘Quick phrases,’ enhances At a… Read more

I second Blake’s observation about a good quality PC microphone to make telephone calls. With Skype able to call landline numbers and Google Voice making PC calls to regular telephone numbers as well, I usually wait until I can call from my PC if the telephone call is important.

Otherwise, I may just have one of my aides make the call for me… Read more

I use one of those micro joysticks with an index finger with my palm resting on a hard flat shaped pad, and yes it is very difficult to keep it just in the right place when going over any bumps in the roadway. It is frustrating.

To fix this problem correctly, one day I plan to put some really deep grooves into my pad so my hand sits down into… Read more

My Invacare chair is way too tall for most restaurant tables, and since I rely on others to feed me it always seems like they have to reach so far up to get to my mouth it’s ridiculous.  So, I actually like sitting at the bar height tables and raise my chair up with the elevator so my head is at the same height as everyone else’s 🙂

I’m glad that companies are finally getting serious with accessibility in their products.  I still find android phones more customizable for my particular needs at this point, but Apple is trying hard to pry me loose.  Check out these new features coming sooner or later this year.  For me, the most useful ones seem to be eye tracking for the… Read more

Not the discussion I was expecting after reading the title, but a good one nonetheless.  🙂  For me, I feel it’s just honestly.  We each have our own hangups about how other people look, so it’s understandable that we know deep down that others looking at us probably feel a certain type of way.  But, we can’t know what is in their heart, but… Read more

Oh yes, Pfizer #2 got me good.  Down for the count for 48 hours, fever, nausea, very intense headache (and I almost never get headaches that last more than the morning Cup of Joe), and weakness.  But, I’m glad I did it, and I feel so safe being around strangers again.  I still mask up indoors like a good comrade, and I might do so for the rest… Read more

My 2nd dose of Pfizer was delayed because I felt like I was coming down with something on the day I was originally scheduled for, but it was an easy process to reschedule it and I took it this past Saturday.  It hurt some, the first one didn’t, and my arm was sore after 5 or 6 hours.  But the next day, about 20 hours after the shot, the side… Read more

Because my diet is pretty limited, I started taking a multivitamin about 15 months ago, and now I am doing daily vitamin D supplementation as well.  I have to admit I do feel better after having started taking both of them daily, and when I tried to stop I noticed a drop off in energy and excitement for life.  So, I guess now I am stuck!

Due to… Read more

I am @ophir6 everywhere, most active on Twitter and occasionally on Facebook!

Ohio is putting us further back in line.  Earliest that I MIGHT be able to try to get one will be 2nd week of February, and I’m frustrated.

Bowling is pretty easy to adapt, using just one of those stationary rails or getting one that can attach to your wheelchair.  The off-the-shelf design of the Ikan Bowler comes to mind, or you can do what I did and hire a local welder to create your own.  I have been bowling competitively in a standard weekly league for over 20 years, and my… Read more

With enough ingenuity, many other sports can be adapted.  I’ve always had dreams about making a device to allow me to play billiards.  I have no doubt someone could easily design a variably powered shooting stick attached to a wheelchair (preferably one that can elevate).  Likewise, I remember playing a version of HORSE with my brother and… Read more

We have had it here in Ohio for most providers for over 2 years.  It is a pain, and seems like one more unnecessary step to discourage workers from entering this field.  I pretty much manage the billing for all of my providers anyway to keep them happy and free of the nonsense, so helping each of them set up EVV and helping manage everything for… Read more

Actually, even better news.  Google went ahead and released this new functionality for any phone running Android 6 and above.  It won’t work as smoothly on older hardware, but I just tried it out on my Moto X4 running android 8 and it looks like all of the functionality is there.  Of course, my voice isn’t near as clear as it needs to be to… Read more

I just came across this new functionality supposedly available on the newest android operating system.  It is a greatly improved version of the accessibility feature called Voice Access which lets you click on things and interact with the phone just by saying numbers and certain phrases.  This new update looks to be a game changer. … Read more

DeAnn, that is the Micro Light Switch, one of the most sensitive switches out there.  I love those things!

Sign me up, I can’t wait.  I even already asked my neurologist if there is any way to get on top of the list when it becomes available 🙂

Wow, I hope you are negative and that you and your mom remain safe and well.  It seems like it is everywhere now and I have had several scares with my providers.  My main aide was definitely exposed a few weeks back because both her sister and her 2 nephews tested positive, and she was around them constantly without taking any precautions with… Read more

I’m in the same boat, and for me feels like we are getting so close to being able to take the vaccine, and it would be terrible to get it now after working so hard to stay away from it!  I know if I would get a bad case of it I would have a hard time, but honestly I’m more worried about my parents catching it because they would need to help… Read more

In a different forum, someone suggested the Vectario Hovergrip HGRPV26 which is available on Amazon.  It is super flexible to attach to just about anything, and superstrong so it doesn’t just fall down after 5 minutes.  The only complaint might be it isn’t long enough to get the phone exactly where you want it, but in the comments section the… Read more

I would choose the money (with a caveat). Like most financial transactions like this one would need to estimate how much money over the remainder of your lifetime is most likely to be spent on one of these new drugs, then a formula would need to be developed to offer the recipient a one-time cash payment in lieu of the treatment.

For me, I… Read more

Any chance of getting these included on Alexa’s Flash Briefing?  That is what I listen to every morning and I would love to add it to my to my feed!

I wasn’t able to join in today, I hope to catch it when it is posted on demand.  My questions include potential long term issues we don’t know much about (retina damage), specific details on specific drugs/foods we need to avoid when on Evrysdi, and please give us some clarity on male infertility.

I have been fighting with my neurologist at OSU since March to try to get me on it, but it’s like pulling teeth with him.  First of all he had never heard of the EAP, and even after I explained what it was and gave him the contact another few months went by and he then claimed that it is a much lengthier process to be approved than expected. … Read more

I’m going to follow this thread because I have so far only used android and Windows products, and I am curious if I am missing out on important features lacking in the ones I’m using.  I know switch access features are way more expanded and useful in Apple devices, but I would like to know, for example, if an Apple TV is able to be used… Read more

This choice is crystal clear for me, Risdiplam.  I have purposely held off going down the Spinraza path (in hindsight, probably not the best idea) seeing Zolgensma so close to the horizon.  When that failed to be approved for adults, Risdiplam was then just over the horizon, so here I am waiting years and years for that horizon to finally… Read more

Those are 2 important topics you brought up, like you I am getting more nervous now that my caregivers are doing more out and about in the community, and I just know eventually one of them is going to catch it.  Not only will I be without care for however long the recovery is for them, but the risk is very real of them bringing it to me.  Can’t… Read more

Everything in our lives must be planned.  How different it must be to not think one tiny bit about the “task” of getting in bed tonight.  I have no idea what it must feel like to just go lay down and start to fall asleep the moment you are ready.

I tend to have lots of political discussion with my aides, but I try to come at things from angles that aren’t particularly easy to see what point I’m trying to make.  I welcome lots of viewpoints, though most would understand which way I lean politically.  I don’t mind engaging at all because I don’t get angry and I honestly do understand where… Read more

How do I feel about?  SAD

In regular times, sure, I understand, and yes I understand the FDA’s desire to have the latest data so they can make the most informed decision, but now in these times?  Times like these when the FDA is allowing off-label use of hydroxychloroquine just because he-whose-name-must-not-be-spoken says “what do you have to… Read more

Another example of how I make the routines useful for me is to launch applications that I just cannot get my Alexa to understand me saying.  In every room where there is an Alexa device, there is also a Google Home.  If I want to watch Buzzr TV on stream player on my echo show, all I need to do is say “Alexa 17” to my echo show.  What this does… Read more